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ABOUT HAE
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CONTACT US
ABOUT HAE
What is HAE?
Triggers
Diagnosis
Treatments
Patient Stories
RESOURCES
For People with HAE
For Those Newly Diagnosed
HAE Café Portal
ER Toolkit
Find a Physician
US HAEA Angioedema Center
Clinical Trials
Youth Resources
Travel
Pregnancy
Patient Stories
HAEA Scholarship Programs
For Healthcare Professionals
Treatment Guidelines
ER Toolkit
US HAEA Angioedema Center
CME
Physician Database
HAE Image Catalog
For Caregivers
For Parents
For Adults with HAE
HAE Café Portal
Clinical Trials
ER Toolkit
Caring for Caregivers
Reimbursement Guidebooks
Guide For Women with HAE
Shared Decision Making Tool
HAE TrackR
HAEA CARE Groups
HAEA Academy
GET INVOLVED
Advocate
HAE Advocacy
Join the Grassroots Advocacy Network
hae day :-)
Donate
Fundraise
Events
Scientific Registry
Clinical Trials
Youth Activities
Volunteer
Join Us
ABOUT US
Mission
Our Team
Corporate Partners
Impact
Membership
NEWS
HAE Research
Our Announcements
HAEA Newsletters
Community Blog
Media Kit
SHOP
Shop HAEA Gear
CONTACT US
Join The Scientific Registry
Research for a Cure
The information you provide will be kept strictly confidential.
You must complete all fields in the form to submit it.
First Name:
Last Name:
Maiden Name:
(if applicable)
Gender:
Male
Female
Address:
City:
State:
select...
Alabama
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Zip Code:
Home Phone Number:
Digits only - no spaces, dashes, or parenthesis
Cell Phone Number:
Digits only - no spaces, dashes, or parenthesis
E-mail address:
Secondary E-mail address:
Date of Birth:
Diagnosis:
HAE Type I
HAE Type II
HAE with normal C1 inhibitor
Acquired
Idiopathic
I have HAE but not sure what type
Undiagnosed
I do not have HAE
Ethnicity:
American Indian or Alaskan Native
Asian
Black American or African American
Caucasian / White
Hispanic
Native Hawaiian or other Pacific Islander
Other or prefer not to say
Are you a member of the US HAE Association?
Yes
No
Do you have a blood relative with known HAE?
Yes
No
Do you have a blood relative with HAE who is currently participating in this research project?
Yes
No
What medication(s) do you currently use?
Berinert
Cinryze
Firazyr and Generic Icatibant
Haegarda
Kalbitor
ORLADEYO
Ruconest
TAKHZYRO
None of the above
You will be contacted by the Registry Administrator once your Consent Forms are received and reviewed with additional information on how to access the Registry Portal.
Sign Up Today!
Have questions?
Contact Registry Administrator
Sherry Swanson
sherryswanson@haea.org
(866) 798 - 5598
US HAEA Scientific Registry
10560 Main Street, Suite PS40
Fairfax City, VA 22030
HAEA.org
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