We are committed to helping children of all ages and their families overcome barriers, successfully manage Hereditary Angioedema (HAE), and have a positive educational experience. Here are some helpful resources for kids – and their parents – that will guide your family's HAE journey.
Be sure to also check out our Youth Activities page for more information on our HAEA Youth Programs!
Get involved with the HAEA and connect with peers who are also living with HAE through our Youth Program!
Sign up for our Youth Programs today to receive updates on the latest youth-focused news, opportunities, and events.
Learning to cope with HAE can be particularly challenging for kids, teens, and young adults. The HAEA Cares Program offers personalized support kits that are mailed directly to them.
*One kit per person and the individual must be a member of the US HAEA to qualify.
This online, secure platform is for children ages 4-12 with HAE and their siblings. They can enjoy fun activities that help them understand, manage, and cope with HAE.
Children can join Brady the Bear and participate in fun and interactive activities to learn more about living with HAE. As a Brady Club member, kids will receive the Brady Activity Books FREE in the mail every quarter. These Activity Books are filled with games, stories from other members, jokes, and more!
Every family of a child with HAE has questions at the start of the school year. How will the school respond if my child misses too many days of school? How will my child make up missed assignments? An HAE school packet can be a great resource for you and your child's school. Preparing the packet ahead of time will help decrease stress and provide answers to the school staff.
SCHOOL PACKET
Chances are your school nurse has never heard of HAE. A letter providing a brief introduction to HAE, an idea of what is needed if medical intervention is necessary, and emergency contact information can be a great help to you and the school. Parents should authorize contact between school health staff and your child's HAE physician, and a dedicated medication supply should remain with the school nurse.
SCHOOL NURSE LETTER
504 plans are formal plans that schools develop to give kids with certain disabilities or conditions, like HAE, the support they need and prevent discrimination. Consider meeting with the school to develop an accommodations plan for your child.
504 PLANS
For students with HAE who are entering college and planning to move away from home, we have some tips to consider to ensure a smooth transition.
COLLEGE PLANNING TIPS
Read the HAEA Children's Book Series
This book series helps kids learn about HAE in a relatable and interesting way. They are designed for kids with HAE and their siblings who are starting to learn about dealing with their condition. Parents will enjoy reading these storybooks with their kids.
ORDER A COPY
Participate in a Youth Event
We host events specifically designed to reach and connect kids and young adults living with HAE and their caregivers.
LEARN MORE
Listen to the #BeyondHAE Youth Podcast
The #BeyondHAE Podcast is a series produced by HAEA youth members. Download today and hear from other kids in the HAE community about their experiences and tips!
LISTEN NOW
Plan for School Success
With teamwork, you can manage your HAE and lead a successful school life!
Apply for a Scholarship
The Pam King HAEA Scholarship Program provides financial support for people with HAE who are entering or attending college and seeking to improve their lives through academic achievement.
Apply now!
Follow Us on Social Media!
We're on Instagram and TikTok! Follow us for the latest information on our events, resources, and to connect with others in the HAE community!
